Xiaohua is 12 and lives in a province in South China. She
is a happy girl who smiles a lot and likes to talk to her friends
after school. People who see Xiaohua would never guess that she
is one of millions of children in the world living and dying with
AIDS.
AIDS is a disease that breaks down the body's immune system
and leaves a person defenceless against infections and illnesses.
Most people who have AIDS manage to survive only a few years after
they get the disease. For some, medicine can help keep them alive,
but the treatment is expensive and does not cure them.
People get AIDS after having been infected with HIV. HIV spreads
through blood and other body liquids. People transmit HIV by having
unprotected sex, by receiving infected blood transfusions or,
as in Xiaohua's case, through birth. Xiaohua's mother contracted
HIV when she was 28, and she died of AIDS only three years after
Xiaohua was born. Xiao Hua's mother did not know that she had
AIDS until Xiaohua was born. Xiao Hua's father, who also has AIDS,
takes care of her, but Xiaohua misses her mother. "I wish
I could remember more about my mum," Xiaohua says, "I
wish that she were here with me and that we weren't sick."
Thousands of children become infected with HIV every day.
In 2002, 800,000 children under 15 became infected; the total
number of infected children in the world was 3.2 million. The
disease is spreading fast in Africa and parts of Asia, mainly
because of a lack of proper health care, prevention and education.
As with most diseases and disasters, the young suffer the most.
For children like Xiaohua there is little hope. The drugs that
are available are much too expensive. Xiaohua knows that she will
die before she has a chance to grow old, but she does not let
that knowledge discourage her. Instead, she has decided to use
the limited time she has left to do something to help others.
She spends much of her time telling others about her disease and
encouraging people to learn how to protect themselves. She also
goes to visit other AIDS patients in hospitals across the country
to support them and cheer them up. "If I were to live long
enough to have a job, I would choose to be a doctor, helping these
AIDS patients," Xiaohua says.
The disease is not the only thing that AIDS patients suffer
from. They also have to deal with people's fear of the disease.
Many people do not know very much about AIDS and are afraid that
any contact with people who have AIDS is dangerous. Xiaohua is
trying to change this by creating a network of patients and doctors
that can persuade hospitals and companies to spend more money
on AIDS research and education. "I wish people would find
out the facts," she says, "and not act as if I were
a bad or dangerous person." When she talks to people about
her disease, she and Dr Wang, an AIDS specialist who helps Xiaohua,
often tell people that the most dangerous thing is not knowing
about the disease. They explain how AIDS spreads and let people
know that it is safe to shake hands, talk, and eat with someone
who has AIDS. People often ask what they can do to help. "If
I were you," Xiaohua says, "I would give an AIDS patient
a hug. That is the best way to show that you care and that we
don't have to feel lonely."
Xiaohua has learnt to live with HIV and the fact that she
will one day develop AIDS. She knows that her life will not be
as long as her classmates', but she will not let the disease destroy
her happiness. "My life may have to be short," she says.
"but there's no reason why it can't be beautiful."